Fundraising is not just about big organised events. A significant amount of the funding raised by the EHE community comes through the accumulation of many small events and donations. There is no amount of money that is too small to matter, particularly for ultra-rare diseases, so we are always delighted when we see somebody raising funds for us, regardless of the amount.
One champion of our cause is Kelly Denton who every year runs a bottle tombola at the Penge Festival in South London, always supported by her daughter who has EHE and their dog Max! Here is a photo of Kelly’s stall at the 2024 Peckham Show where she raised an amazing £230. Thank you so much Kelly for another great effort. And please say thank you to Neve and Max too!