Kym contacted the EHERCC in July, reaching out for information about the disease as her twin sister, Emma, had been diagnosed with EHE. Here is her story in her own words:
“In July 2024, my twin sister, Emma, was diagnosed with an ultra-rare form of cancer called Epithelioid Haemangioendothelioma (EHE). EHE is a vascular sarcoma cancer that affects women more than men, and is particularly aggressive in young adults and children. There is currently no known cure for EHE.
Over the last 6 months Emma has shown more strength and resilience than I have ever seen in a person. She’s fighting (hard) against this disease everyday whilst remaining the world’s best Mummy to her two boys and partner to Jake.
On a personal level, it’s been so hard for me not being able to control this situation and make Emma better as she is literally my other half. It has broken our hearts as a family to watch her go through this.
I have taken control in the only way possible which is to learn about this disease and to raise money for critical research to take place in the hope of finding a cure for EHE.
I will be running the Half Marathon Lancashire Loop Trail Run on Sunday 24th November in support of the EHE Rare Cancer Charity UK who provide support and advice for patients and their supporters, and are also driving a dynamic research programme . Any donation would be so gratefully accepted! Every donation will help and 100% of the funds you donate will go to research as the charity is run by volunteers.
Thank you in advance for your contribution to this cause that means so much to me.”
Kym is fighting so hard for her sister, and has already raised over £5,000 for EHE research. We want to say a huge thank you to Kym and hope that people will continue to support her and Emma. You can find her fundraising page at https://www.gofundme.com/f/find-a-cure-for-epithelioid-hemangioendothelioma-ehe