Kym contacted the EHERCC in July, reaching out for information about the disease as her twin sister, Emma, had been [...]
Read more
Fighting for Emma
Category Fundraising
Category: Fundraising
Lorraine and Louise are on the march!
We love stories of people ‘stepping up to the plate’ and raising critically needed funding for EHE research, often taking [...]
Read more
Kelly’s at the Penge Festival again!
Fundraising is not just about big organised events. A significant amount of the funding raised by the EHE community comes [...]
Read more
Brilliant supporters ride for EHE
The EHE community in the UK not only find runners every year to help their cause, but also put up [...]
Read more
Katy runs the London Marathon
Nicola Henderson was delighted to be able to share news of a special person taking on the London marathon: “We [...]
Read more