The EHE community in the UK not only find runners every year to help their cause, but also put up a group of riders who take on the ‘Ride London 100’ event, a 100 mile cycling sportive on closed roads in Essex, north-east of London. Sally Baker said:
“This is the UK’s biggest cycling event and sees more than 20,000 riders riding 100 miles to raise funds for so many fantastic causes. We were thrilled to have 14 riders riding for us this year.”
Four brilliant women rode in support of a dear friend, Sarah, who was diagnosed with EHE late in 2023, as Sarah explained:
“My brilliant friends are out raising money and awareness for EHE today – doing ride London. One of them had to buy her first bike for the event as she’d never really cycled before. Best of luck to everyone riding today”.
Kelly, whose daughter has EHE, also had great support from Sam, her daughters cousin, and several other riders recruited to the cause by Sam. Unfortunately Sam in the end had to take part from his lounge, as Kelly explained:
“Today Sam is cycling 100 miles in his living room for EHE rare cancer charity as he recently broke his wrist and cannot take part in the actual Ride London 100 event tomorrow. Go Sam!”.
Sam rode a 100 mile virtual route based on a ride in France!
Kelly also recruited several other riders who did a great job and raised significant funding for EHE Research. She wanted to thank Jeremy particularly for his great support.
The EHERCC could not be more grateful for this great support, as Hugh Leonard noted:
“Once again I am humbled by these wonderful acts of kindness and support. Taking on 100 miles is a big task, and to see people doing this on their first bike, not being riders, or in their lounge with a broken wrist is awe inspiring. I know I speak for the global EHE patient community when I say THANK YOU to each of them.”